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/Australian Amyloidosis Network

About Australian Amyloidosis Network

Enhancing awareness and early diagnosis of Amyloidosis

From despair to hope: Neil and Linda Gibson’s experiences living with AL amyloidosis.

My name is Neil Gibson I was diagnosed in 2014 with stage 3 AL Amyloidosis. I had never ever heard of amyloidosis before this. My prognosis was not good, a matter of months and if it hadn’t been for the CCC, Carmel in 2E outpatients in PAH, convincing me [...]

2019-12-10T22:21:24+00:00September 22nd, 2019|Patient Experiences|

Laurie O’Donnell’s story

Laurie O’Donnell wrote his moving story in October 2017 in the last few weeks of his life. Laurie O’Donnell was the  brother of Vince O’Donnell.  My name is Laurie O’Donnell.   I am 65 years of age and three and a half years ago after having neuropathy problems (peripheral nerve [...]

2020-03-29T20:42:30+00:00July 22nd, 2019|Patient Experiences|