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Amyloidosis is a group of complex, incurable diseases which are frequently misdiagnosed and under-recognised.

The AAN is an amalgamation of four multi-disciplinary medical amyloidosis centres, dedicated to the diagnosis and management of Australian patients with all types of amyloidosis.

This website has been developed by the AAN as a practical resource for Australian patients, carers and their doctors, to enhance awareness and ensure the timely and correct diagnosis of their type of amyloidosis.

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Amyloidosis Centres operate in Sydney, Brisbane, Melbourne and Perth.
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Click through to our tailored portals to find information and resources for patients & carers or health professionals

Patients & Carers
Health Professionals
TAFAMIDIS Capsule 61 mg Vyndamax® Pfizer Australia Pty Ltd, Resubmission to request an Authority Required listing for the treatment of ATTR-CM. Not recommended by the PBAC    The PBAC did not recommend daratumumab SC, for use in combination with cyclophosphamide, bortezomib and dexamethasone (CyBorD) for the treatment of patients with newly diagnosed systemic AL amyloidosis.   A Note of Caution re VRD in AL amyloidosis    Coronavirus (COVID-19) Official Australian Government Information

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Website Support

This web site is financially supported by:
the Neely and Rice families in memory of Dr Mervyn Neely, surgeon, who died of AL amyloidosis in 1998.
© 2019 Australian Amyloidosis Network
Site last updated 16 September 2020