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This will be the first World Amyloidosis Day.
A DAY FOR CONNECTING PATIENTS AND CARERS,
A day for connecting the amyloidosis community to the general public.
Amyloidosis is a rare and complex disease which is barely known by the general public and medical professionals alike.
The objective for the first ever World Amyloidosis Day, organized by Amyloidosis Alliance and patient organisations from 18 different countries, spanning 4 continents, is to alert the world to the diagnostic delay that patients face, which averages 4 years*.

Faster diagnoses and better quality treatment can only be acheived by more widespread knowledge of the disease.

We chose the symbolism of the link for bringing patients, carers and all other caregivers together. Each and every one of us has something to bring to the fight against the illness.

Our campaign is aimed at all: health authorities and professionals, pharmaceutical companies, scientists, associations, etc. Let’s be the link to supporting patients and their loved ones.